GBD 2019 Blindness and Vision Impairment Collaborators, Vision Loss Expert Group of the Global Burden of Disease Study. Causes of blindness and vision impairment in 2020 and trends over 30 years, and prevalence of avoidable blindness in relation to VISION 2020: the right to sight: an analysis for the global burden of disease study. Lancet Glob Health. 2021;9(2):e144–e60.
Group UKPDS. Intensive blood-glucose control with sulphonylureas or insulin compared with conventional treatment and risk of complications in patients with type 2 diabetes (UKPDS 33). Lancet. 1998;352(9131):837–53.
Keel S, Xie J, Foreman J, van Wijngaarden P, Taylor HR, Dirani M. The prevalence of diabetic retinopathy in Australian adults with self-reported diabetes: the National Eye Health Survey. Ophthalmology. 2017;124(7):977–84.
Cikamatana L, Mitchell P, Rochtchina E, Foran S, Wang J. Five-year incidence and progression of diabetic retinopathy in a defined older population: the Blue Mountains Eye Study. Eye (Lond). 2007;21(4):465–71.
Yau JW, Rogers SL, Kawasaki R, Lamoureux EL, Kowalski JW, Bek T, et al. Global prevalence and major risk factors of diabetic retinopathy. Diabetes Care. 2012;35(3):556–64.
Taylor HR, Pezzullo ML, Keeffe JE. The economic impact and cost of visual impairment in Australia. Br J Ophthalmol. 2006;90(3):272–5.
Magliano DJ, Peeters A, Vos T, Sicree R, Shaw J, Sindall C, et al. Projecting the burden of diabetes in Australia–what is the size of the matter? Aust N Z J Public Health. 2009;33(6):540–3.
Hammes H-P, Feng Y, Pfister F, Brownlee M. Diabetic retinopathy: targeting vasoregression. Diabetes. 2011;60(1):9–16.
Shaw JE, Sicree RA, Zimmet PZ. Global estimates of the prevalence of diabetes for 2010 and 2030. Diabetes Res Clin Pract. 2010;87(1):4–14.
Cheung N, Mitchell P, Wong TY. Diabetic retinopathy. Lancet. 2010;376(9735):124–36.
National Health and Medical Research Council. Guidelines for the management of diabetic retinopathy. Australia: NHMRC; 2008.
Hutchinson A, McIntosh A, Peters J, O’keeffe C, Khunti K, Baker R, et al. Effectiveness of screening and monitoring tests for diabetic retinopathy–a systematic review. Diabet Med. 2000;17(7):495–506.
Ting DSW, Cheung GCM, Wong TY. Diabetic retinopathy: global prevalence, major risk factors, screening practices and public health challenges: a review. Clin Exp Ophthalmol. 2016;44(4):260–77.
Rubino A, Rousculp MD, Davis K, Wang J, Girach A. Diagnosed diabetic retinopathy in France, Italy, Spain, and the United Kingdom. Prim Care Diabetes. 2007;1(2):75–80.
Scanlon PH. The English national screening programme for diabetic retinopathy 2003–2016. Acta Diabetol. 2017;54(6):515–25.
Nguyen HV, Tan GSW, Tapp RJ, Mital S, Ting DSW, Wong HT, et al. Cost-effectiveness of a national telemedicine diabetic retinopathy screening program in Singapore. Ophthalmology. 2016;123(12):2571–80.
Misra A, Bachmann M, Greenwood R, Jenkins C, Shaw A, Barakat O, et al. Trends in yield and effects of screening intervals during 17 years of a large UK community-based diabetic retinopathy screening programme. Diabet Med. 2009;26(10):1040–7.
Conlin PR, Fisch BM, Orcutt JC, Hetrick BJ, Darkins AW. Framework for a national teleretinal imaging program to screen for diabetic retinopathy in Veterans Health Administration patients. J Rehabil Res Dev. 2006;43(6):741–8.
Australian Government Department of Human Services. Medicare item reports. Canberra: Australian Government; 2021. Available from: http://www.medicareaustralia.gov.au/statistics/mbs_item.shtml
Foreman J, Keel S, Xie J, Van Wijngaarden P, Taylor HR, Dirani M. Adherence to diabetic eye examination guidelines in Australia: the National Eye Health Survey. Med J Aust. 2017;206(9):402–6.
Xie J, Arnold AL, Keeffe J, Goujon N, Dunn RA, Fox S, et al. Prevalence of self-reported diabetes and diabetic retinopathy in indigenous Australians: the National Indigenous Eye Health Survey. Clin Exp Ophthalmol. 2011;39(6):487–93.
McCarty DJ, Fu CL, Harper CA, Taylor HR, McCarty CA. Five-year incidence of diabetic retinopathy in the Melbourne Visual Impairment Project. Clin Exp Ophthalmol. 2003;31(5):397–402.
Tapp RJ, Zimmet PZ, Harper CA, De Courten MP, Balkau B, McCarty DJ, et al. Diabetes care in an Australian population: frequency of screening examinations for eye and foot complications of diabetes. Diabetes Care. 2004;27(3):688–93.
Piyasena MMPN, Murthy GVS, Yip JL, Gilbert C, Zuurmond M, Peto T, et al. Systematic review on barriers and enablers for access to diabetic retinopathy screening services in different income settings. PLoS One. 2019;14(4):e0198979.
Egunsola O, Dowsett LE, Diaz R, Brent M, Rac V, Clement FM. Diabetic retinopathy screening: a systematic review of qualitative literature. Can J Diabetes. 2021. https://doi.org/10.1016/j.jcjd.2021.01.014.
Graham-Rowe E, Lorencatto F, Lawrenson J, Burr J, Grimshaw J, Ivers N, et al. Barriers to and enablers of diabetic retinopathy screening attendance: a systematic review of published and grey literature. Diabet Med. 2018;35(10):1308–19.
Crossland L, Jackson C. Successfully implementing a diabetic retinopathy screening service in general practice: what does the evidence tell us? Aust Fam Physician. 2017;46(7):529.
Lake AJ, Browne JL, Rees G, Speight J. What factors influence uptake of retinal screening among young adults with type 2 diabetes? A qualitative study informed by the theoretical domains framework. J Diabetes Complicat. 2017;31(6):997–1006.
Glasson NM, Larkins SL, Crossland LJ. What do patients with diabetes and providers think of an innovative Australian model of remote diabetic retinopathy screening? A qualitative study. BMC Health Serv Res. 2017;17(1):1–16.
Spurling GK, Askew DA, Hayman NE, Hansar N, Cooney AM, Jackson CL. Retinal photography for diabetic retinopathy screening in indigenous primary health care: the Inala experience. Aust N Z J Public Health. 2010;34:S30–S3.
Livingston P, McCarty C, Wood C, Harper A, Keeff J, Taylor H. Use of focus groups to identify health promotion strategies for the early detection of diabetic retinopathy. Aust N Z J Public Health. 1998;22(2):220–2.
Elo S, Kyngäs H. The qualitative content analysis process. J Adv Nurs. 2008;62(1):107–15.
O’Brien BC, Harris IB, Beckman TJ, Reed DA, Cook DA. Standards for reporting qualitative research: a synthesis of recommendations. Acad Med. 2014;89(9):1245–51.
Cane J, O’Connor D, Michie S. Validation of the theoretical domains framework for use in behaviour change and implementation research. Implement Sci. 2012;7(1):1–17.
Richard L, Gauvin L, Raine K. Ecological models revisited: their uses and evolution in health promotion over two decades. Annu Rev Public Health. 2011;32:307–26.
Villalba C, Askew D, Jaiprakash A, Donovan J, Roberts J, Russell A, et al. A mixed-methods retrospective study: 10 years of diabetic retinopathy screening in urban Aboriginal and Torres Strait Islander primary care. Aust J Prim Health. 2019;25(1):24–30.
Lindenmeyer A, Sturt JA, Hipwell A, Stratton IM, Al-Athamneh N, Gadsby R, et al. Influence of primary care practices on patients’ uptake of diabetic retinopathy screening: a qualitative case study. Br J Gen Pract. 2014;64(625):e484–e92.
Cavan D, Makaroff L, da Rocha FJ, Sylvanowicz M, Ackland P, Conlon J, et al. The diabetic retinopathy barometer study: global perspectives on access to and experiences of diabetic retinopathy screening and treatment. Diabetes Res Clin Pract. 2017;129:16–24.
Hipwell AE, Sturt J, Lindenmeyer A, Stratton I, Gadsby R, O'Hare P, et al. Attitudes, access and anguish: a qualitative interview study of staff and patients’ experiences of diabetic retinopathy screening. BMJ Open. 2014;4(12):e005498.
Ghaljaie F, Naderifar M, Goli H. Snowball sampling: a purposeful method of sampling in qualitative research. Strides Dev Med Educ. 2017;14(3)1–6. https://doi.org/10.5812/SDME.67670.
Morse JM. The significance of saturation. Thousand Oaks: Sage publications Sage CA; 1995.
Guest G, Bunce A, Johnson L. How many interviews are enough?: an experiment with data saturation and variability. Field Methods. 2006;18(1):59–82.
Clarke V, Braun V. Teaching thematic analysis: overcoming challenges and developing strategies for effective learning. Psychologist. 2013;26(2):120–3.
Askew D, Schluter PJ, Spurling G, Maher CM, Cranstoun P, Kennedy C, et al. Diabetic retinopathy screening in general practice: a pilot study. Aust Fam Physician. 2009;38(8):650.
University of Melbourne. Online self-directed diabetic retinopathy grading course. 2017. https://drgrading.iehu.unimelb.edu.au/cera/index.asp. Accessed 27 Oct 2020.
Ellery B, Milverton J, Newton S, Morona J, Gum D, Parsons J, et al. Retinal photography with a non-mydriatic retinal camera in people with diabetes. MSAC application no. 1181, Assessment Report. Canberra: Commonwealth of Australia; 2014.
Nielsen KB, Lautrup ML, Andersen JKH, Savarimuthu TR, Grauslund J. Deep learning–based algorithms in screening of diabetic retinopathy: a systematic review of diagnostic performance. Ophthalmol Retina. 2019;3(4):294–304.
Xiao D, Bhuiyan A, Frost S, Vignarajan J, Tay-Kearney M-L, Kanagasingam Y. Major automatic diabetic retinopathy screening systems and related core algorithms: a review. Mach Vis Appl. 2019;30(3):423–46.
Li Z, Keel S, Liu C, He M. Can artificial intelligence make screening faster, more accurate, and more accessible? Asia Pac J Ophthalmol (Phila). 2018;7(6):436–41.
Piyasena MMPN, Murthy GVS, Yip JL, Gilbert C, Peto T, Premarathna M, et al. A qualitative study on barriers and enablers to uptake of diabetic retinopathy screening by people with diabetes in the Western province of Sri Lanka. Trop Med Health. 2019;47(1):1–10.
Fairless EA. Factors influencing the receipt of diabetic retinopathy screening in a high-risk population; 2020.