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Table 2 Home care needs of caregivers of children and adolescents with OI (N = 142)

From: Home care needs assessment among caregivers of children and adolescents with osteogenesis imperfecta: a cross-sectional study

Items

n (%) of higher

needs

Order

Home care needs

115/142 (81.5%)

 

Helping the child carry out physical fitness recovery exercises at home

103/142 (72.5%)

1

Understanding precautions regarding treatment drugs

103/142 (72.5%)

1

Relieving the child’s pain

100/142 (70.4%)

3

Improving the child’s attitude toward fracture prevention

98/142 (69.0%)

4

Helping the child have proper body posture (standing, sitting)

97/142 (68.3%)

5

Self-rescue after a fracture

96/142 (67.6%)

6

Helping the child cope with postoperative complications of fractures

96/142 (67.6%)

6

Relieving psychological and mental stress

89/142 (62.7%)

8

Caring for the child after plaster external fixation

87/142 (61.3%)

9

Use of assistive devices (cane, wheelchair, walker)

76/142 (53.5%)

10

Adapting my house to be safer

70/142 (49.3%)

11

Preparing a healthy daily diet for the child

69/142 (48.6%)

12

Helping the child manage personal hygiene

44/142 (31.0%)

13

Helping the child put on and take off clothes

43/142 (30.3%)

14