Table 1 Demographic, clinical and treatment characteristics described in early-onset colorectal cancer patients’ personal narratives published online in Australia, NZ and United Kingdom
Categories | Australia (n = 116) | NZ (n = 21) | UK (n = 136) | Total (n = 273) | |||||
|---|---|---|---|---|---|---|---|---|---|
n | % | n | % | n | % | n | % | ||
Demographic | Gender | ||||||||
Female | 92 | 79.3 | 14 | 66.7 | 94 | 69.1 | 200 | 73.3 | |
Male | 21 | 18.1 | 7 | 33.3 | 38 | 27.9 | 66 | 24.2 | |
Not reported | 3 | 2.6 | 0 | 0.0 | 4 | 2.9 | 7 | 2.6 | |
Relationship status | |||||||||
Married or in relationship | 77 | 66.4 | 6 | 28.6 | 98 | 72.1 | 181 | 66.3 | |
Single | 35 | 30.2 | 15 | 71.4 | 37 | 27.2 | 87 | 31.9 | |
Not reported | 4 | 3.5 | 0 | 0.0 | 1 | 0.7 | 5 | 1.8 | |
Children | |||||||||
Pregnant or under 18 yrs | 60 | 51.7 | 6 | 28.6 | 83 | 61.0 | 149 | 54.6 | |
Not reported | 56 | 48.3 | 15 | 71.4 | 53 | 39.0 | 124 | 45.4 | |
Age at diagnosis | |||||||||
20–29 yrs | 19 | 16.3 | 3 | 14.3 | 12 | 8.8 | 34 | 12.5 | |
30–39 yrs | 57 | 49.1 | 15 | 71.4 | 59 | 43.4 | 131 | 48.0 | |
40–49 yrs | 29 | 24.0 | 2 | 9.5 | 28 | 20.6 | 59 | 21.6 | |
Not specifically reported | 11 | 10.6 | 1 | 4.8 | 37 | 27.2 | 49 | 18.0 | |
Clinical | Cancer type | ||||||||
Bowel or colon | 108 | 93.1 | 19 | 90.5 | 130 | 95.6 | 257 | 94.1 | |
Rectal | 8 | 6.9 | 2 | 9.5 | 6 | 4.4 | 16 | 5.9 | |
Diagnosis stage | |||||||||
Less advanced (Stage I-II) | 14 | 12.1 | 1 | 4.8 | 26 | 19.1 | 41 | 15.0 | |
Advanced (Stage III-IV) | 70 | 60.3 | 17 | 81.0 | 94 | 69.1 | 181 | 66.3 | |
Not reported | 32 | 27.6 | 3 | 14.3 | 16 | 11.8 | 51 | 18.7 | |
Current diagnosis | |||||||||
Disease in progression | 4 | 3.5 | 0 | 0.0 | 7 | 5.2 | 11 | 4.0 | |
Complete remission | 45 | 38.8 | 5 | 23.8 | 64 | 47.1 | 114 | 41.8 | |
Partial remission | 15 | 12.9 | 0 | 0.0 | 8 | 5.9 | 23 | 8.4 | |
In treatment | 21 | 18.1 | 2 | 9.5 | 32 | 23.5 | 55 | 20.2 | |
Stable | 5 | 4.3 | 1 | 4.8 | 3 | 2.2 | 9 | 3.3 | |
Not reported | 26 | 22.4 | 13 | 61.9 | 22 | 16.2 | 61 | 22.3 | |
Family history | |||||||||
Yes | 23 | 19.8 | 2 | 9.5 | 20 | 14.7 | 45 | 16.5 | |
No | 8 | 6.9 | 4 | 19.1 | 7 | 5.2 | 19 | 7.0 | |
Not reported | 85 | 73.3 | 15 | 71.4 | 109 | 80.2 | 209 | 76.6 | |
Genetic mutation | |||||||||
Yes | 6 | 5.2 | 3 | 14.3 | 16 | 11.8 | 25 | 9.2 | |
No | 2 | 1.7 | 0 | 0.0 | 2 | 1.5 | 4 | 1.5 | |
Not reported | 108 | 93.1 | 18 | 85.7 | 118 | 86.8 | 244 | 89.4 | |