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Table 3 Most used standard and valid questionnaires

From: Pragmatic solutions to enhance self-management skills in solid organ transplant patients: systematic review and thematic analysis

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Name

Description

Count

1

Beliefs about medicines using the Beliefs about Medicines Questionnaire (BMQ)

Two five-item scales to assess the patient’s belief regarding the need for prescribed medication for controlling their disease and their concerns about adverse side effects

4

2

World Health Organization Quality of Life Scale (WHOQOL-BREF)

It was developed by the World Health Organization (WHO), as a short form of WHOQOL-100. It covers all aspects of the QOL (quality of life) scales including physical health, psychological, social relationship, and environment

4

3

Basel Assessment of Adherence to Immunosuppressive Medication Scale (BAASIS©)

It is used as a medication adherence measurement scale in transplant recipients

3

4

Patient Health Questionnaire (PHQ-9)

It is a kind of easy-to-use patient questionnaire as a self-administered version of the PRIME-MD diagnostic instrument for common mental disorders. It can measure the severity of depression

2

5

Brief Perceived Social Support Questionnaire (F-SozU K-6)

The 6-item five-point Likert scale brief version of F-SozU to measure general perceived social support. Higher scores display higher levels of perceived social support

2

6

Relationships Scales Questionnaire (RSQ)

It is used to evaluate the psychometric properties of the relationship scales questionnaire (RSQ)

2

7

Medication Experience Scale for Immunosuppressants (MESI)

It is a seven-item self-report questionnaire to evaluate subjective experiences and attitudes toward immunosuppressive medication among patients

2

8

Transplant Effect Questionnaire (TxEQ-D)

It was used to evaluate the specific problems associated with organ transplantation in five subscales such as “worry”, “guilt”, “disclosure”, “responsibility”, and “adherence”

2

9

Satisfaction with Information about Medicines Scale (SIMS-D)

The SIMS-D assesses patients’ satisfaction with information about safe and accurate self-management of medicines

2

10

The Short Form 36 Health Survey Questionnaire (SF-36) or 12-item Short-Form Health Survey (SF-12)

It is a self-reported measure of health and quality of life status for a specific disease population. It is available in multiple languages

2

11

Mishel Uncertainty in Illness Scale (MUIS)

It examined the impact of uncertainty on illness

2

12

The Center for Epidemiological Studies-Depression (CES-D)

It is a 20-item questionnaire to estimate how often they experienced symptoms associated with depression over the past week

2

13

Hospital Anxiety and Depression Scale (HADS)

It is a 14-items questionnaire to assess generalized anxiety disorder and symptoms of depression

2

14

General Self-Efficacy (GSE) scale

It is a 10-item self-report questionnaire to assess optimistic self-beliefs to cope with a variety of difficulties in life

2

15

Exercise of Self-care Agency (ESCA) Scale

It assesses one's ability for self-care in different areas comprising self-concept, self-responsibility, knowledge and information seeking, and passivity

2

16

Self-Efficacy for Managing Chronic Disease 6-Item Scale (SES6C)

It is a free scale to assess how confident patients have with chronic illness in performing certain activities on a visual analog scale

2

17

Health Education Impact Questionnaire (HEIQ)

It is a patient-specific questionnaire to assess the effectiveness of patient education programs

2

18

EuroQol-visual analogue scales (EQ-VAS)

It is used to describe the level of patients’ health problems in five dimensions

2

19

Self-Efficacy for Exercise (SEE) Scale

A 9-item questionnaire to assess the confidence level of participants

1

20

Long-Term Medication Behavior Self-Efficacy Scale (LTMBSES)

It is designed to assess the self-efficacy behavior of transplant recipients regarding long-term medication

1

21

Treatment Adherence Measure (TAM)

It is a seven-item questioning item to assess a patient's adherence to treatment

1