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Table 3 Summary of Patient- and Family-Centered Care Domains and Actions

From: Actions and processes that patients, family members, and physicians associate with patient- and family-centered care

Domain

Specific Actions/themes

PFCC Concept #1: Dignity and Respect

 Builds relationship

Spends sufficient time

 

Listens/gives undivided attention

 

Expresses caring and empathy

 

Makes personal connection—verbal

 

Makes personal connection—nonverbal

 

Communicates with honesty and transparency

 

Responds without judgement

 

Protects privacy

 

Relays sense of hope

 Personalizes care

Knows the patient

 

Includes family

 

Understands and accommodates personal circumstances

 

Elicits and respects patients’ values

 

Practices cultural competence and sensitivity

 

Provides empathetic advice

 Respects patient and family members’ time

Minimizes wait times

 

Notifies patients about delays

 

Balances needed time to build relationships with delays in seeing patients

PFCC Concept #2: Information Sharing

 Provides patients and family members with information

Provides information—test results and medical records

 

Provides information—disease processes and procedures

 

Provides information—advice/information regarding a health issue

 

Provides information—for decision making/options

 

Provides information—patient educational materials and programs

 

Helps interpret information

 

Follows up

 Maximizes technology to communicate

 

PFCC Concept #3: Participation

 Engages in shared decision making

Elicits patient’s values

 

Explores options

 

Supports patient and family knowledge, priorities and/or decisions regarding health-related issues

 

Refers to alternative healing modalities

 Partners with patient

Provides coaching support and advise

 

Acknowledges patient’s role and responsibility

 

Sets priorities

PFCC Concept #4: Collaboration

 Actively seeks out and supports opportunities to collaborate with patient and family members

Solicits input

 

Demonstrates commitment to change

 

Involves patients and family members in quality improvement

 

Provides training and incentives

 

Addresses concerns about providing input

Other PFCC Actions

 Advocates for patient’s needs

Advocates with insurance

 

Advocates with other clinicians

 

Helps find resources

 

Helps overcome obstacles to getting medication and/or care

 

Engages in persistent problem solving

 

Provides uncompensated services

 Coordinates patient’s care

Coordinates with other medical staff

 

Facilitates communication

 

Functions as quarterback for health care team

 

Provides quality referrals

 Ensures access to care

 

 Starts with conservative treatment

 

 Has up-to-date technical knowledge

 

 Supports wellness and quality of life