Table 5 HCPs views: Factors that reduce burden or build capacity
Reducing burden | • Assistance with system navigation • Knowledge of available resources and greater access (waitlists, funding for equipment and social services) • Improved access to specialists and mental health services (telehealth, transport support, no gap payments, address waitlists and workforce). • Technology to improve service co-ordination (shared healthcare information plus time to read it) • Supportive HCPs who are patient-centred • Sustainable (long-term) service funding |
Increasing capacity | • Available income • Understanding their condition and the point of treatment, being confident in management • Acceptance of condition and recognition of the need to address it • Ability to prioritise health • Living in a healthy environment • Availability of services (home help, respite) • Having goals and a purpose • Early provision of services (before people become too disabled) • Good mental health • Good social relationships |
Both | • Established routine/integrating treatment into life, able to troubleshoot and prioritise • Manageable life demands (e.g. caring role) |