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Table 2 Burden and Capacity coding

From: Healthcare professionals’ perspective on treatment burden and patient capacity in low-income rural populations: challenges and opportunities

Normalisation Process Theory (NPT)   Patient capacity (BREWS)  
Coherence (Sense-making) Understanding the condition and treatments, planning care, setting goals (B) Biography Reframing to create a meaningful life that includes illness and treatment
Cognitive participation (Relationship work) Obtaining support from family, friends and HCPs; managing difficulties in relationships (R) Resource mobilisation Access to, and ability to mobilise physical (energy, physical function); cognitive (literacy, memory); personal (resilience, self-efficacy); financial; and instrumental (time, transport etc.) resources
Collective action (Enacting work) Carrying out work – adhering to treatments, making lifestyle and psychological adjustments, attending appointments (E) Environment Healthcare and social environments that fit with healthcare needs without interfering with other priorities
Reflexive monitoring (Appraisal) Monitoring symptoms, reflecting on work undertaken and adjusting as necessary (W) Work realisation The experience of, and ability to normalise treatment workload as well as other life roles
   (S) Social functioning Ability to socialise; practical social support; social acceptance of the patients’ CD and limitations; relations with HCPs