Table 2 Burden and Capacity coding
Normalisation Process Theory (NPT) | Patient capacity (BREWS) | ||
|---|---|---|---|
Coherence (Sense-making) | Understanding the condition and treatments, planning care, setting goals | (B) Biography | Reframing to create a meaningful life that includes illness and treatment |
Cognitive participation (Relationship work) | Obtaining support from family, friends and HCPs; managing difficulties in relationships | (R) Resource mobilisation | Access to, and ability to mobilise physical (energy, physical function); cognitive (literacy, memory); personal (resilience, self-efficacy); financial; and instrumental (time, transport etc.) resources |
Collective action (Enacting work) | Carrying out work – adhering to treatments, making lifestyle and psychological adjustments, attending appointments | (E) Environment | Healthcare and social environments that fit with healthcare needs without interfering with other priorities |
Reflexive monitoring (Appraisal) | Monitoring symptoms, reflecting on work undertaken and adjusting as necessary | (W) Work realisation | The experience of, and ability to normalise treatment workload as well as other life roles |
(S) Social functioning | Ability to socialise; practical social support; social acceptance of the patients’ CD and limitations; relations with HCPs |