Table 2 Additional themes identified in interviews
Themes | Examples |
|---|---|
Motivation for being a carer | • Marriage vows • Memories of past life together |
Changing roles and relationships | • Demise of reciprocal loving relationship • Loss of independence |
Coping mechanisms | • Living environment • Slow course of HD |
Employment & financial changes | • Loss of employment • Lower income |
Experiences of social/ health care services | • HD management • Respite care |
Scottish Huntington's Association | • Practical advise • Emotional support |
Living with HD | • Impact of the disease • Personal development of carers |