Table 1 framework of the interviews

1. Opening of the interview: the purpose of the study was repeated and informed consent specifically asked again.

2. Start of the interview with questions on the child's name and the relation of the interviewee to the child.

3. Open questions on the illness episode. Interviewees were asked to tell in their own words what had happened.

4. More directed questions on the start of the illness, the evolution of the illness and possible symptoms.

5. Open questions on the decisions and actions of the interviewee taken during the course of the illness, including the reasons for these decisions.

6. Final open question: whether the interviewee had anything to add to the interview.